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How I Made a Mistake and Was Given The Opportunity to Say I’m Sorry

“You put the toast in the basement.  That made me sad.”  Emma stared at me expectantly. I drew in a breath.  My chest felt tight.  I knew exactly what she was referring to.  We’ve had similar...

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But I’m Her Mother…

“Mommy!  Mommy!  I need help.  Fix it!”  Emma cried out.  “Have to go to nurse Mommy.  Mommy gonna fix ears.  Unplug.  Mommy unplug ears.”  Emma came to me and waited expectantly.  “Ohhhh, sweetheart....

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Another Topic of Controversy… No I am NOT Trying to Find Them, They Are...

Ever feel compelled to write about something that you’d just as soon not talk about?  I’m feeling that way about today’s post for a whole host of reasons which I’ll discuss.  But before I do, let me...

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Standing with Henry, Diets and Where Do You Go to Get Advice?

Please read, “like”, share and tweet my latest interview with 13-year-old Henry, published yesterday on Huffington Post.  For all you tweeters, I am trying to get Henry on Katie Couric’s show.  If...

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“Burden”? I Don’t Think So.

The roller coaster I call “autism” is less actual and more a description of my emotions, expectations and judgments surrounding specific things such as communication differences, internal issues, pain...

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“Will She Be Okay?”

“Will she be okay?”  This was the question that went unanswered for the first nine years of my daughter’s life.   “Will she be okay?” I asked every autism specialist, neurologist, pediatrician and...

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Muddying the Water: Alleviating Pain ≠ “Recovery”

A few months ago I wrote about how, once we were given an autism diagnosis for our daughter, so many of the things we believed were uniquely and wonderfully “Emma”, were suddenly thought to be examples...

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Being an Anchor

Yesterday I wrote a post, Seeing But Unable to Believe about people who see people like my daughter and assume they are incapable of a great many things.  These are the people for whom presuming...

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Peering into the Darkness

Sometimes there is such tremendous darkness, it scares me.  Sometimes my instinct is to go deeper into the darkness.  Sometimes my instincts are not helpful.  Sometimes my instincts lead me the wrong...

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